Access to data
In Lifebrain we integrate data from different longitudinal studies conducted in several European countries. Due to legal restrictions we cannot share Lifebrain as a database to external researchers. However, external researchers can contact the individual sites and request access to their data. Here you will find the information on whom to contact, and the sharing policies of the different cohorts.
University of Oslo
Data from LCBC supporting published Lifebrain results is available on reasonable requests, given appropriate ethical and data protection approvals.
Max-Planck Institute for Human Development
The Berlin Aging Study (BASE and BASE II)
The BASE and BASE-II data from all occasions of measurement are collected in well-documented central databases and available for external researchers on request.
Brain maturation in children and adolescents (HUBU) and Live Active Successful Ageing (LISA)
The longitudinal HUBU project and the LISA project do not have established data sharing policies. However, researchers with interest in the HUBU project can contact Senior Researchers William Baaré (email@example.com) and Kathrine Skak Madsen (firstname.lastname@example.org). For the LISA project please contact Prof. Carl-Johan Boraxbekk (email@example.com)
Data from the BETULA & COBRA cohort can be applied for by contacting firstname.lastname@example.org. Access to data by qualified investigators are subject to scientific and ethical review and must comply with the European Union General Data Protection Regulations (GDPR)/all relevant guidelines. The completion of a material transfer agreement (MTA) signed by an institutional official will be required.
University of Barcelona
Due to ethical constraint, data derived from all Barcelona cohorts (WAHA, BBHI, PD, MSA, CR, GABA, iTBS) cannot be shared outside the Lifebrain project.
University of Cambridge
Cambridge Centre for Ageing and Neuroscience (Cam-CAN) and Centre for Attention, Learning and Memory (CALM)
CamCAN data are available for non-commercial purposes to researchers working at recognised institutions who can demonstrate a clear research hypothesis. Further details of the data that are available, the method for requesting the data, and the terms under which the data are made available can be found on the camcan archive web site.
The CALM project, currently still in progress, will share data through similar mechanisms once data collection and processing have concluded. Until that time, enquiries can be made directly to CALM Management Committee using email: email@example.com
University of Oxford
Please find the Whitehall II data sharing policy here.
The Whitehall II MRI Substudy data will also soon be available on the Dementias Platform UK (DPUK) Data Portal.
The Netherlands Study of Depression and Anxiety (NESDA)
In principle, NESDA data are available to all scientific researchers working at non-commercial research organizations worldwide. For researchers working at commercial organizations (e.g.pharmaceutical industry) we have more strict data access procedures. Read more about our cohort and how to file a data request here and our policy on data access here.